Cole's Cause
Coles Bucket List
Cole's Bucket List is inspired by a Beautiful little Angel Named Avery.
For the last 4 years Cole has been battling an ...undiagnosed condition that has caused vision loss hearing loss seizures and among other things severe developmental delay. We have traveled all over the country to multiple hospitals and Cole has endured multiple surgeries sedations and tests without any answers.
As parents our worst nightmare came true this week. We were told that in the simplest of terms Cole has a degenerative disease that is getting worse. In other words he has lost brain volume...which has caused his hearing to worsen along with many other things.
We know that kids can do very well on very little grey matter but when you start losing function that is when red flags are raised.
We are told that it is not acute meaning we have more than days weeks or months but other than that we have no idea how much time we have left with our amazing son. Repeat MRIs will be done every 4-6 months to monitor Coles brain volume.
In the meantime we have decided that we have alot of fun things to do to make up for the lack there of in the last 4 years......so after a good friend told us about Averys Bucket list we were inspired to create one for Cole.
Below is the list....we will use this site to show you all of the fun memories that we are making for Cole. We will post pictures and videos of each completed item and tell the story of the event through Coles eyes!! We look forward to sharing this with you all!!
Items in red are items that have already been completed.
Items in green are items that are in the works!!
Check out the pics of what we have done!!!
The list in no particular order
Go to Disney World
Have a blue mohawk
Go skiing
Go iceskateing
Ride an elephant
have Rob Dyrdek sign a pair of my shoes
see the blueman group
go to a laser light show
go down a water slide and a twirly slide
eat a hot fudge sundae
go to the circus
play dress up in Daddys clothes
go snowmobiling
go to the zoo
go camping
play hide and seek
play duck duck goose
meet a celebrity
meet my baby cousin Gavin
be on tv
have a slumber party
ride a bike
ride on a ferris wheel
bake cookies
have a water balloon fight
go bowling
go to a concert
ride in a convertible
visit all 50 states
play at the beach
tell stories around a fire
ride in a helicopter (for fun)
ride in a monster truck
make an adapted fishing pole and catch a big fish
shoot my b.b. gun
meet a President
have ice cream for breakfast
sit in Santas sleigh
visit the North Pole
wear a funny mustache all day
hangout with Daddy all day and watch cartoons in my funderpants
meet a Rockstar
fly a kite
go to a dance
roll down a grassy hill
go to summer camp
jump on a trampoline
swim in a warm ocean
have a picnic
pet a cow
stay up all night watching cartoons
lay on a blanket and look at the stars
ride in a dune buggy
go 4 wheeling
play in a tree house
see Disney on ice
make Christmas ornaments
ride in a hot air balloon
illustrate a book
Do a turtle backpack turtle spin ;)
get my face painted
build a fort out of pillows and blankets
go to the friendly farm
go to story land
go on a date
eat a pbj sandwich
buy a star and have it named after me x 3 :)
make a snowman
ride on a train
ride on a carousel
ride in a drag racing car
race around a track in a race car
play on a sports team
Go to a Red Sox game and meet Wally
Items added by our friends!
Ride in a Fire Truck
Be the Grand Marshall of a parade!
Items you can help with:
get 100 members on my facebook page Cole's Bucket list
get 1,000 members
get 10,000 members
get 50,000 members
get 100,000 members
See HR2671 CAL Undiagnosed Disease Research and Collaboration Network Act get passed. Click the link below to send a letter to your State Rep telling them you support it and want them to sign on as a Co sponsor!
http://www.opencongress.org/bill/112-h2671/show
We are open to any other ideas so feel free to email us with your suggestions!!! Also please share Coles group with your friends!
We will use this section of Coles website to post photos and videos of Cole crossing these items off the list.
First item crossed off the list was the hot fudge sundae. Our close family friend Melissa showed up after work on the day the list was posted with a hot fudge sunday for Cole!! He sure did enjoy it!!! Thanks Melissa!!
Play on a team
Cole joined Jasons Angels and now plays tee ball every sunday night!! Here are some pics from our first night!!!
Cole and Daddy playing the field and at bat!!
Be on TV......that goal has been accomplished a few times now. But it started with David Carns of WPTZ!!! Thanks so much David for all of your support it means so much to us!!! Heres a pic of David Jen and Cole at our first interview. Below are links to Coles stories!!!
http://www.youtube.com/watch?v=kOnqOFbZCRk
Build a fort out of pillows and blankets!!!! Mommy Cole Jen and Wyatt did this one! Everybody had a great time!! Cole even had a friend from school over for the first time the next day and they had a ball playing in the fort!!
Cole Mommy and Cousin Wyatt!
Cole, Wyatt and Jen!!!!
Buy a star and have it named after me....well the first night the list was posted 3 people bought me stars!! How lucky am I? Thank you all so much!! Will post more pics of us looking for our stars later!! Here is the bear that came with one of them!! Thank you Moira, Trista, Jamie and Kyle, Sharon, Duane and family as well as our anonymous star gifter!!!!
For the last 4 years Cole has been battling an ...undiagnosed condition that has caused vision loss hearing loss seizures and among other things severe developmental delay. We have traveled all over the country to multiple hospitals and Cole has endured multiple surgeries sedations and tests without any answers.
As parents our worst nightmare came true this week. We were told that in the simplest of terms Cole has a degenerative disease that is getting worse. In other words he has lost brain volume...which has caused his hearing to worsen along with many other things.
We know that kids can do very well on very little grey matter but when you start losing function that is when red flags are raised.
We are told that it is not acute meaning we have more than days weeks or months but other than that we have no idea how much time we have left with our amazing son. Repeat MRIs will be done every 4-6 months to monitor Coles brain volume.
In the meantime we have decided that we have alot of fun things to do to make up for the lack there of in the last 4 years......so after a good friend told us about Averys Bucket list we were inspired to create one for Cole.
Below is the list....we will use this site to show you all of the fun memories that we are making for Cole. We will post pictures and videos of each completed item and tell the story of the event through Coles eyes!! We look forward to sharing this with you all!!
Items in red are items that have already been completed.
Items in green are items that are in the works!!
Check out the pics of what we have done!!!
The list in no particular order
Go to Disney World
Have a blue mohawk
Go skiing
Go iceskateing
Ride an elephant
have Rob Dyrdek sign a pair of my shoes
see the blueman group
go to a laser light show
go down a water slide and a twirly slide
eat a hot fudge sundae
go to the circus
play dress up in Daddys clothes
go snowmobiling
go to the zoo
go camping
play hide and seek
play duck duck goose
meet a celebrity
meet my baby cousin Gavin
be on tv
have a slumber party
ride a bike
ride on a ferris wheel
bake cookies
have a water balloon fight
go bowling
go to a concert
ride in a convertible
visit all 50 states
play at the beach
tell stories around a fire
ride in a helicopter (for fun)
ride in a monster truck
make an adapted fishing pole and catch a big fish
shoot my b.b. gun
meet a President
have ice cream for breakfast
sit in Santas sleigh
visit the North Pole
wear a funny mustache all day
hangout with Daddy all day and watch cartoons in my funderpants
meet a Rockstar
fly a kite
go to a dance
roll down a grassy hill
go to summer camp
jump on a trampoline
swim in a warm ocean
have a picnic
pet a cow
stay up all night watching cartoons
lay on a blanket and look at the stars
ride in a dune buggy
go 4 wheeling
play in a tree house
see Disney on ice
make Christmas ornaments
ride in a hot air balloon
illustrate a book
Do a turtle backpack turtle spin ;)
get my face painted
build a fort out of pillows and blankets
go to the friendly farm
go to story land
go on a date
eat a pbj sandwich
buy a star and have it named after me x 3 :)
make a snowman
ride on a train
ride on a carousel
ride in a drag racing car
race around a track in a race car
play on a sports team
Go to a Red Sox game and meet Wally
Items added by our friends!
Ride in a Fire Truck
Be the Grand Marshall of a parade!
Items you can help with:
get 100 members on my facebook page Cole's Bucket list
get 1,000 members
get 10,000 members
get 50,000 members
get 100,000 members
See HR2671 CAL Undiagnosed Disease Research and Collaboration Network Act get passed. Click the link below to send a letter to your State Rep telling them you support it and want them to sign on as a Co sponsor!
http://www.opencongress.org/bill/112-h2671/show
We are open to any other ideas so feel free to email us with your suggestions!!! Also please share Coles group with your friends!
We will use this section of Coles website to post photos and videos of Cole crossing these items off the list.
First item crossed off the list was the hot fudge sundae. Our close family friend Melissa showed up after work on the day the list was posted with a hot fudge sunday for Cole!! He sure did enjoy it!!! Thanks Melissa!!
Play on a team
Cole joined Jasons Angels and now plays tee ball every sunday night!! Here are some pics from our first night!!!
Cole and Daddy playing the field and at bat!!
Be on TV......that goal has been accomplished a few times now. But it started with David Carns of WPTZ!!! Thanks so much David for all of your support it means so much to us!!! Heres a pic of David Jen and Cole at our first interview. Below are links to Coles stories!!!
http://www.youtube.com/watch?v=kOnqOFbZCRk
Build a fort out of pillows and blankets!!!! Mommy Cole Jen and Wyatt did this one! Everybody had a great time!! Cole even had a friend from school over for the first time the next day and they had a ball playing in the fort!!
Cole Mommy and Cousin Wyatt!
Cole, Wyatt and Jen!!!!
Buy a star and have it named after me....well the first night the list was posted 3 people bought me stars!! How lucky am I? Thank you all so much!! Will post more pics of us looking for our stars later!! Here is the bear that came with one of them!! Thank you Moira, Trista, Jamie and Kyle, Sharon, Duane and family as well as our anonymous star gifter!!!!
5/19/2012
Tell stories around a fire!! We all enjoyed a nice fire in the backyard at Justin and Melissas house!!! Cole fell asleep enjoying the fresh air and the warm fire!! Here he is with his Daddy and Kyle!
5/22/2012
Pet a cow!! A huge thank you to Putnams Farm for allowing us to come visit the cows and check off another list on our item! We had so much fun!!! Channel 3 joined the fun check out the link below!!
After all the cow and tv excitement we went home to rest and then it was off to Coles first dance!! He was invited to an 8th grade semi formal by a beautiful girl named Hannah!! He had so much fun dancing with all the girls!!! Thanks Hannah we love you!
5/25/2012
Ice cream for breakfast! A huge thank you to our local Friendlys staff for making our breakfast sundaes so special!!
After breakfast we went home and completed "Wear a funny mustache all day!!!!" Cole thought that the mustaches were so funny!!!!!
5/29/12
BLUE MOHAWK!!! Thank you Maria Hammerschmidt for taking the time to come to our house and spend the morning with us giving Cole and Wyatt their mohawks!!! (dont worry Wyatts is only hair gel) Everyone LOVES Coles Mohawk!!
Wyatt Maria and Cole!!!!!
5/28/2012
We took a trip to Limerock Connecticut so that Cole could ride in a racecar!!! Although it was very hot Cole enjoyed not only his ride but laying on the blanket listening to the cars while the raced!! A huge thank you to the Bellows Family for making the day so special for all of us!! It means the world!!!
6/16/2012
Ride in a Fire Truck and be the Grand Marshall of a Parade.....2 items added by you guys!!
What a wonderful Day! I cannot say enough good things about all the guys on the Springfield Fire Department. They went above and beyond to make this day so special for Cole. They presented him with his own Fire Helmet and Badge (Which road on the front of the fire truck during the parade) We got to Fire Department early in the morning and were able to visit with the guys before it was time for the parade. At which time we were surprised when a member of the Alumni Association presented us with a certificate stating Cole was the Honorary Grand Marshall!!! It was so cool and completely unexpected!!! Then Cole and his Daddy hopped in the brand new ladder truck and rode with an awesome Firemen through the parade!!! It was such an awesome experience for our whole family as we watched with excitement when we saw the fire trucks coming. As a Mother I felt very proud and honored by all the love and support shown for my son!!!
Tell stories around a fire!! We all enjoyed a nice fire in the backyard at Justin and Melissas house!!! Cole fell asleep enjoying the fresh air and the warm fire!! Here he is with his Daddy and Kyle!
5/22/2012
Pet a cow!! A huge thank you to Putnams Farm for allowing us to come visit the cows and check off another list on our item! We had so much fun!!! Channel 3 joined the fun check out the link below!!
After all the cow and tv excitement we went home to rest and then it was off to Coles first dance!! He was invited to an 8th grade semi formal by a beautiful girl named Hannah!! He had so much fun dancing with all the girls!!! Thanks Hannah we love you!
5/25/2012
Ice cream for breakfast! A huge thank you to our local Friendlys staff for making our breakfast sundaes so special!!
After breakfast we went home and completed "Wear a funny mustache all day!!!!" Cole thought that the mustaches were so funny!!!!!
5/29/12
BLUE MOHAWK!!! Thank you Maria Hammerschmidt for taking the time to come to our house and spend the morning with us giving Cole and Wyatt their mohawks!!! (dont worry Wyatts is only hair gel) Everyone LOVES Coles Mohawk!!
Wyatt Maria and Cole!!!!!
5/28/2012
We took a trip to Limerock Connecticut so that Cole could ride in a racecar!!! Although it was very hot Cole enjoyed not only his ride but laying on the blanket listening to the cars while the raced!! A huge thank you to the Bellows Family for making the day so special for all of us!! It means the world!!!
6/16/2012
Ride in a Fire Truck and be the Grand Marshall of a Parade.....2 items added by you guys!!
What a wonderful Day! I cannot say enough good things about all the guys on the Springfield Fire Department. They went above and beyond to make this day so special for Cole. They presented him with his own Fire Helmet and Badge (Which road on the front of the fire truck during the parade) We got to Fire Department early in the morning and were able to visit with the guys before it was time for the parade. At which time we were surprised when a member of the Alumni Association presented us with a certificate stating Cole was the Honorary Grand Marshall!!! It was so cool and completely unexpected!!! Then Cole and his Daddy hopped in the brand new ladder truck and rode with an awesome Firemen through the parade!!! It was such an awesome experience for our whole family as we watched with excitement when we saw the fire trucks coming. As a Mother I felt very proud and honored by all the love and support shown for my son!!!
